Shanice Green (Guest) · 03:07
My story starts when I was born. So basically, my mum didn't have a great labor with me. She reminds me most times that I took 3 days to come, and she was in a lot of pain, and she had a lot of, like, she had failed forceps, failed ventouse. It just didn't go straight to plan, and I was her first child as well. So I'm very surprised that she ended up having more children afterwards because I may have put her off for life. And then I, because my mum had failed forceps, the forceps burnt my cheek and basically it rubbed on my cheek and it made it very, very sore. So there was a burn on my cheek and I've got a dent in my head and I was in special care for 3 to 6 days. 6 days I was in special care for. I came home, everything seemed fine, and then at the age of, I think, 6 months old, I developed a bowel condition. So I was under specialists, etc., and my parents noticed that I would go blue. So I would get mad and go blue and hold my breath. And every time I went to the doctors, they were like, well, it can't be happening because it's not happening right now, you know, you can't be telling the truth. And whether it was the right thing to do or not, but I am grateful that he did that. My parents took me to A&E, which is Accident and Emergency. And my dad pinched me just so I would hold my breath and go blue again. So they're like, "Okay, it's me." Yeah, so they all, you know, rushed around and, you know, to sort me out because they didn't believe it numerous times before. It's just a kind of running joke with my family now that my dad pinched me, you know. And from there, I was under specialist for my bowel condition. Fast forward to when I was 6 now. So I've already started school. I was quite a clumsy child, my mum said. So, you know, I would fall over thin air and I would always have bruises and cuts on me. That was just me. Actually, at the age of 5, My little sister was born as well. But it was just a typical life. I still had the bowel condition, still had issues with that, but I just lived my life normally. And then at the age of 6, I went into hospital for a washout for my bowel. So basically what that is, the tube up your nose, down your throat, and into your stomach. Just to clear you out, which doesn't sound great. And especially at the age of 6, like, I didn't know what was going on. My mum actually had to hold me down, like, pin me down on the bed for them to actually do it because I wasn't having any of it. So as you can imagine, as a parent, it must have been heartbreaking to know that you're distressing your child but you know it's for basically the greater good, do you know what I mean? It's for her best interest. So they did that. It was disgusting. They gave me some very nasty stuff to drink as well, and I still remember to this day what it tastes like. It's just— it wasn't good at all. So when I was ready to go home, for them to discharge me, a nurse, I believe, said to my mum, "Why is her head over to one side?" And my mum said, "Oh, I've always put it down to shyness." I was her first child. I was a pretty shy child anyway, even though I did get mad as a baby and then start going blue. But, you know, so then I— my mum said, "Yes, it's just down to shyness." And You need to remember, I was already under specialist. I was under specialist for my bowel. I was at school. No one ever asked, so clearly everything's fine then, right? The nurse asked, can I lift up the back of her top just to look at her back? Mum was like, it's absolutely fine. That was it. They lifted up the back of my top and noticed there was a curvature in my spine. From there, It just spiraled. It was like the first day of my life again. And it happened quite a few times throughout my life journey. But from there, I was referred to the most amazing, spectacular— I can't— the gratitude for that hospital was amazing. Great Ormond Street Children's Hospital. And it's just amazing, absolutely amazing. Children from all around the world go to this hospital. I was then diagnosed. I had like MRI scans, CT scans, X-rays, and I was diagnosed with neurological conditions. So I have— then I just had Arnold-Chiari malformation, syringomyelia, and scoliosis, which is the curvature. My parents were then told that if I did not have the first surgery, which is, which was at the base of my brain, which is called a decompression surgery, that I wouldn't be here. The fluid, basically the cerebral spinal fluid that goes around your nervous system, gets basically stuck. Unblocked. So mine goes from the base of my brain all the way down my spinal cord. And they said, if we didn't— if we don't get this flowing, I wouldn't be here today. Absolutely not. That must have been a lot for my parents to digest. I was only 7 then, and I don't remember much. I was just a child, and I believe that children are just so resilient and just go with the flow and just like, "Okay, it's fine." They don't realize that, you know, there is some mishaps that could happen and the complications that can happen from surgery. You know, and I look back now and I think my mum had to sign a piece of paper, a consent form, with all these complications on it. And one of them complications was death. Like, that must be a lot for a parent to be able to do. So at the age of 7, I had my first surgery, which was brain surgery, and that was it. That was it. And then every 6 to 8 months after that, I would go into hospital again for further surgery. My next one was on my spine, so I have a pleural shunt, which is like a plastic tube that goes from the middle of my spine and goes all the way around into my lungs to drain off the fluid. But children grow and it would get blocked, it would get dislodged, so I'd go back in again for them to take it out and put another one back in. I like to say that they whipped it out and whipped it back in, but I'm just very crude and just straight to the point. Actually, when I was 9, 8 or 9, because I was in and out of hospital, they noticed that when I was asleep, that the alarms would go off because I would stop breathing. So I had to have my tonsils and adenoids taken out. But because it's me and because I'm not straightforward, I end up having a blood clot. They had to go back in again. To take the blood clot out. So I was in hospital for a little bit longer, but it didn't actually solve it. I still stopped breathing. So actually I had 2 surgeries that wasn't actually needed in a sense because it didn't make a difference. I still stopped breathing in my sleep when I was 10. I had an MRI scan in August, I believe, It would have been just before I went on a family holiday, family vacation, um, in the UK. And we went there, everything was fine, had an amazing time, came home. Um, I think it probably went on a Friday. We would have come home on a Saturday, and there was an answer machine message on the landline phone, and it basically said, "Shanice needs to go in hospital for further surgery on the Tuesday." It was now beginning of September, coming up to the beginning of September, and I was due to go back to school after the break from the school holidays. My mum decided to send me to school on the Monday because she didn't want me to overthink. She just wanted everything to be normal. And my norm is actually going to school and then going into hospital, having surgery, coming home, recovering, and going back to school again. That's just— that was just my life. So I went to school on the Monday. I actually remember what I wore. I actually remember it was like a black, like, blazery type with, like, black skirt. And I was looking quite kind of good. We was allowed to wear our own clothes. In primary school, um, and I went there, came home. My mum, of course, in that time was like packing, etc., for us, and went to hospital on the Tuesday morning, um, and then that's where it all started again. And like I said, my— when I was 7, it was kind of like my whole life restarted. This one, it was— I didn't know what was coming and no one knew it was coming. It was just gonna go— I was just gonna go into hospital to have the surgery that I had when I was 7, just to the base of my brain. And what happened was I had 4 operations, 4 surgeries in 6 days. That's a lot on anyone's body anyway. I had a blood clot as well, so they had to take that out. So it was at the base of my brain as well. And I don't remember all this. I don't remember much of it at all, thankfully. I ended up paralyzed from my neck down. I'm not paralyzed anymore. Which is absolutely amazing. But I had to learn how to do everything all over again. I was then in a wheelchair, and I remember the wheelchair they gave me in hospital to use. It was absolutely horrible. You could feel every single bump. When someone pushed you, you could feel every single bump that was possibly there. You wouldn't even know a bump was there, but it was there. You could feel it. And I had to learn how to eat again, like feed myself, how to hold a pen, how to sit up again. I've learned everything from scratch. It's kind of like if you imagine you do that when you're a, like, baby, you know, the first toddler, and I've had to learn it all again. I have weakness down my left-hand side, so my left hand and arm wouldn't work as much anyway, so I just did everything with my right. And I remember when I first learned to sit up on my own and my mum cried like an absolute baby. It was— I remember that. That's one part I do remember. But it was very lonely. It was very lonely, you know. Thankfully, I had my mum with me. My dad and my granddad and my sister would come and see me every single Saturday, um, get on 3 buses to come to see me. My granddad had a walking stick, and yeah, he would make sure he would come and see me. He was in pain 24/7, but he still made sure he'd come see his baby. And that's what pushed me along, that I had something to look forward to at the weekend. I would see them, just be normal, you know, just get away from the reality that I was in at this present moment, you know. The nurses and the doctors were lovely, even down to the person that gave my food. His name was Wilson, and I still remember that. And he used to give me extra food because I think I was his favorite. And I was in that hospital for 3 months. And then they said, "There's still work for you to do, but we can't give it to you, so you need to go to a rehabilitation hospital." Also in this time, my house that I was living in wasn't accessible for me. So in that time, my mum had to make phone calls and go back to where we was living and arrange, find somewhere for me to live, basically. So in them 3 months, it was just crazy. And they said, we will not allow you to go home until we know this is where you're going to be, this is safe for you to live. So I went to the rehabilitation hospital, which was a about roughly about 2 hours away from where my family are, and it wasn't as easy to get to, so they couldn't come to see me. I was in this hospital for 2 months. Because it was over Christmas, they actually allowed me home for Christmas, which was amazing. I was allowed home because my— thankfully, a couple of weeks beforehand, my mum found us a place for us to live. And my mum, my dad, and my sister already moved in. It wasn't, of course, the most amazing Christmas because everything was still needed to be sorted in the house, and I've literally just come home out of hospital. I just want to rest. I just want to relax. I just want to have normal time. So Christmas wasn't amazing, but it was so good to be home, like, so good to be home. Listen to my sister's craziness, just the normal stuff, you know. And so I'm very, very grateful that they did this because that hospital was a completely different game to where I was before. When I was in Great Ormond Street Hospital, I had my own room, I had my own bathroom. It was just, it was just amazing. Whereas where I was then in the rehabilitation hospital, There was roughly probably about 12 to 16 beds all in one room. There was like maybe 2 feet between each bed. It wasn't— there wasn't much there, so it was kind of confined, you know, and I didn't know who anyone was. Thankfully, the— there was a girl that was in the bed next to me and she was lovely. We kind of got along really well, was the same age. I think there's literally like months between us, you know. But my mum couldn't stay with me in the actual room because of course there was no room. So she, um, they had like accommodation for parents, um, that was like on the campus but nowhere near me. So that was difficult for me as well. So not only did I not know where I was, I didn't really know the nurses, I didn't know anything really. And now my mum's not allowed to stay in the same room as me, so she'll stay until a certain time before— while I settle before bed and then go and come back in the morning. And every day I would have occupational therapy and physiotherapy. It was literally only, what, 1 hour each? So between them, there was nothing to do throughout the day. And they did have schooling at that hospital. It wasn't as good as the previous hospital at all. And it was— I grew up a lot there, you know. I felt that in them 2 months, as much as I've— from the age of, say, 6, 7, I had to grow up rapidly. This was a whole different thing. I just kind of like— I went from at 6 and 7, I had to grow up to maybe teenage years. Mentally. But when I went to the rehabilitation hospital, it's like I had to be an adult. I had to do everything. I had to grow up very, very quickly in that time. And then thankfully, they got me to a stage where I was allowed to go home. So I could stand holding bars, and I was trying to take steps. And then I went home, which was amazing. The 28th of January. I remember that date all the time. It was just amazing. I didn't get home until late, actually, because the ambulance service couldn't find my home. It was just a little bit of a— fun. And then in March, I went back to school. However, they— it wasn't accessible for me, so I had to work my backside off, basically, because they had stairs and I had to get up them stairs. I was on the top floor because I was like the last year of like school, that school. And my mum had to every day try and walk up the stairs, and I used to stay up there. Everyone else used to go out to play or in the playground. They used to go down for dinners, and I couldn't. I had— I was just stuck on the top floor until the end of the day, and then my mum could come and get me and walk me back down. But it was nice to have that normality. You know, thankfully I did pass school. I got through it. The only thing I didn't do, and I actually remember this, was my science because I had hospital that day, so I didn't actually have an exam or test on science. I remember that was the Monday. Quite crazy what you remember after, like, all this time. And then I went to secondary school, which we call secondary school, I think you call it high school, and I was still in a wheelchair, but there wasn't many people from my old school that were there, so they knew that, oh, they knew the real Sinead. They knew the real Sinead. They knew who she was. They knew how crazy she was, and just, you know, I was just just their friend, you know. But going to a new school meant that children weren't sure if to approach me or not because, oh my goodness, she's in a wheelchair, so clearly I don't know how to approach her. And that was difficult. I remember my first day, um, it's like a taste the day, and there was this girl who said to me— they were doing like PE, like sports and stuff like that, and gymnastics. And I was just sat there watching, and she said to me, "I feel really sorry for you." And I'm like, "Why?" She said, "Because you're in a wheelchair." And I was like, "Okay, um, I don't know how to take this, and I don't want to be rude." However, back then, my God, I didn't really think how I think now. Of she didn't know how to approach me, and she hasn't maybe seen someone that's in a wheelchair before and looks in a different light than I do. So then I was a little bit defensive, but I was just like, "Oh, okay, well, I'm fine, you know. I've still got a mouth. I can still talk. The only thing is I can't do the sports that you're doing right now, and actually that's using energy, and I don't want to use energy." So I did that. It was a time of my life that was kind of normal in a sense because I didn't go into hospital for surgery. I did have a couple of surgeries, but they were just on my feet. I didn't have no major surgeries. I just had days off of school because of pain, because I'm in pain 24/7. Or muscle spasms, and it used to just take it out of me. I remember me and my mum used to time them. So when a muscle spasm happens, the muscle contracts. And one of the spasms that I used to have was where my shoulder used to go up to basically my head, and it used to stay there. It didn't move. There was no way my mum couldn't push it down. And my record was 4 and a half hours. F. It kind of sounds silly now thinking about it, but it was just to get us through, you know, this rubbish time because it was hurting me, and what else are you going to do, you know? And then when I was— I got through school, I then went to sixth form, which is basically like further education, um, like college, etc. And that— we finished— even in the UK, we finished school at 16. Um, and then I went there, and then I was doing Level 3 in Health and Social Care. I did my Level 2 in Health and Social Care, um, at the end of high school, and then I was doing my Level 3 in Health and Social Care because I knew that I wanted to help people. I love that. Like, from a young age, I wanted to be a nurse, a children's nurse actually, and actually at Great Ormond Street Hospital because, you know. And then I realized once I got into a wheelchair, that can't happen. And then I decided to be a doc. I thought maybe I'll be a doctor. And it just kept on changing, but it was always to help.