Aveline Clark (Host) · 07:49
They give me medication for the pain, for the head, for the migraine, and so the nausea. They do a whole bunch of tests. Then they started, you know, throwing around words like maybe you have a brain tumor, cancer, MS. They had no idea what was going on. And they sent me home because they didn't know. So I went home. I spent 4 months in bed with vision loss and with a migraine. And when I tell this story, and I have told this story many, many times, and when I tell this story, people, I can see sort of in the back of their mind or they just kind of, their brains went like, really, you had a migraine for 4 months? I had a migraine for 4 months. The only time I ever had any relief was when the pain was so intense, I wanted to like, you know when you have an itch and you want to like stick your, like behind your eye or something, you want to stick your finger in and pull your eyeball out? Kind of like that, but with my brain. I want to, like, pull it out and scratch around my head because it was so bad. The only relief I got was when it was that bad and I was crying, like, like weeping and sobbing from the pain. My husband would take me to Emerg and they would give me some Demerol, and they would give it to me directly into my vein in my hand. They didn't put it in a drip, they manually pushed it in. So if you've ever had that, you know, the saline drip, it just slowly brings the medication No, no, no. The dem— the— then when they push it in, like, it hits you like a tidal wave. And I pass out for an hour, 2 hours sometimes. And then I remember waking up and my husband was helping me walk to the car. And then like that, the migraine would come back. Like, instantaneously. Like, the people— the people at the emergency department knew me by my first name. And they thought that I was a drug addict. They actually thought that I was going to try and get medication because I was addicted that badly to it. And they didn't— and finally one of the nurses was like, no, no, like, she's got something going on here. So lots of time in bed. Those 4 months, I remember 3 or 4 events, going to emerg a couple times, taking medication that they gave me for my migraine that I had an allergic reaction to while I was on the phone with my best friend. And she's like, are you here? And I kept passing out.. And they're like, you got to go to emerg because you're allergic to the meds. And, you know, that's kind of it. I don't remember that whole period of time. And I finally got to see an ophthalmologist who is an eye specialist surgeon, right? And I went in to see him. He looked at my scans and he goes, oh, he goes, I know exactly what you have. He goes, you have— and it's called central serous retinopathy, CSR for short. It sounds fancy. So what it is, is the fluid behind the retina. So we have our eyeball and have all the tissue. The tissue, the membrane becomes thin, and when it becomes thin, then the fluid leaks through and the fluid causes the blurry vision. And he said to me, one, it's super common in people that have high stress. It's super common in people who are like Type A personalities who are like very overly productive. And he said, and the thing is, for most people, your brain will correct it for you. So you don't actually know you have it. So when we look at things, right, we see two images and our brain makes it as one. So we look, it looks like I'm seeing one of you, but I am seeing one of you, but it's because my brain made it that way. My brain checked out. It was like, we're not doing this anymore. You're going to have to deal with your stress. And you have to deal with all of this. And the only way to deal with it is to rest and to reduce your stress. There's no way to fix it. If it happens once, it will happen again. Very highly likely that it will. The only way to fix it is to have surgery to repair it, which is about $8,000, not covered by OHIP here, so that's out of pocket. So, you know, I had to kind of deal with that and sort of figure out what I was going to do. So all that happens. I get most of my vision back. I go back to teaching. At that point, I was like, I need to do something, maybe to start thinking about changing my career. So I ended up— because I played roller derby, I was the trainer on my team. So I went and got my personal training certification. And, and that it was only for that. It was not to have it as a business. And then slowly I started getting clients, so I was teaching and training. So then I went down to part-time teaching. So I'm recovered about a year into this, and then I start suffering with massive pain in my hands and my feet and my arms and my legs. And when I talk about it, it was So intense. It felt like bolts of electricity. Like, you know when you see a cartoon character and they stick their finger in the light socket, the electrical socket, and they get that jolt, right? That's what it felt like through all of my hands, feet, legs, everything. And I literally spent almost a year and a half going through that. Nothing would touch the pain at all. And I just suffered like I would cry. I would weep because the pain was so bad. And I stopped doing stuff. Like, I stopped seeing people. I stopped going places because I just couldn't function because it would get— I would go and do something and then I would suffer from it. So what ended up happening was my life ended up being Gravol, as much Advil as I could take in the morning, cry in the shower. Stop, finish crying. Sometimes it was very short, sometimes it was lengthy. Get out of the shower and have to actually convince myself how I was going to get ready for my day. Get dressed, eat breakfast, get myself to work, come home, take more meds, and go to bed. And that's what I did. That's what— that was every day for me. And finally, one day I was skating. I was at practice and we were doing our yearly testing. So we're skating around the track. The pain that I had in my feet was so intense, I actually collapsed on the track and I could not get up. So I literally was lying there sobbing as my teammates are trying not to run into me and jump over me. And I can hear them now even skating by me and, and like coming to stop and see if I'm okay. And I couldn't do anything. I just laid there and cried. And eventually I was able to drag myself off the track over into the corner. And I just sat there and wept because I was like, what? The hell is happening? And how come nobody knows what's going on? And I finally, you know, and I had all the tests, bone scans, densities, MRI, like all the things. They couldn't find anything. So my doctor said, well, let's send you to a rheumatologist and see what's going on. Maybe they can. I get in, I sit down, my husband's with me. Because of the intensity of the pain and even the vision loss, your memory is very affected by it and you don't remember lots of things. Like I remember Conversations I had, I don't even remember having them with people. They're like, don't you recall? No, I don't. Is lots of fog. So see the rheumatologist, he's like, sit down. And then he stand, do all the tests, right? And he's like sort of poking me and he not hard. Like if I'm talking intensity, like 1 out of 10, like really not hard, but it was extremely painful to me. Like I was living. On a daily basis at that point for about a year and a half at about a 15 out of 10 for pain. That's where I was living. It was unreal. And you just cope, like you just do what you have to do to get through your day. Right? And he says to me, oh yeah, he goes, you have fibromyalgia. I'm like, what? He goes, your textbook case, all the trigger points for fibro, like each those places that I'm touching you, those are the pain points for people that have fibro. Okay, great. I felt relief because someone told me what was going on that I've been dealing with for this year and a half, all this pain, right? And, but the thing is, is that it didn't really do anything for me. Like, it didn't actually help. Okay. He gave me meds. They, okay. They, they helped a little bit. So my pain went down for sure. Absolutely. I went to about an 8 out of 10. So 8 from 15 is fantastic. And I sort of felt lost because I knew people that had fibro, so I talked to them. You know, you do research, right? As soon as you find out what you got, you do research. Read all the books, went to the website, all the things. And basically all the things that I found were, one, it sucks. Fibro sucks. Really, really horrible. That's too bad for you. Number two, just take meds and you hope that you get a good combination that works. Number 3, you're just going to have to live with it. And this might be as good as it gets. And worst advice, worst things that I've ever heard, and even people that I know were like, "No, it's just how it is." Yes, flares can last for a week. You can do one thing and you're in bed for a week from it. Yeah, absolutely. That's how your life is going to be. So for a while there, I was like, "Well, that's just how it's going to be." And I took my meds and I did all the things I was supposed to do. And, um, just prepared for flares. So I lived my life with the mindset of when's the next one. This is my system for when the next flare happens. And that's just how I lived my life for years. And then I had this little sebaceous cyst on my wrist, very small, but the pain that came with it was intense. I went to my doctor and he's like, yep, we'll do some scans, see what's going on. He's like, it's just a sub— like, it shouldn't cause you any pain. And I couldn't do anything with that hand. I couldn't lift things up. I couldn't— like, I couldn't even do up my pants. The pain was that bad. He's like, I don't know what's going on. Let's send you to a surgeon, a hand surgeon, hand specialist. Great, awesome. I'm like, yes, I got this appointment, so excited. Go see him. He has all my scans, he has everything. And he looks at me and he says, hmm, he goes, well, that's very interesting. And I'm like, what? And he goes, very interesting. And I said, wow, so, and he's like, well, what you are presenting with doesn't match anything that I see in all of your tests. So none of this should be happening. And I'm like, okay, but it is. And he goes, correct. I understand that, but they don't go together. So whatever you are experiencing, I can see nothing in these scans and in any of these tests that I can help you with. So there's nothing I can do for you. Yeah. Right. And I'm like, oh, you've got to be kidding me. I was so, I was so angry. I'm so mad. And that's the thing. Like you kind of go through the phases, right? You kind of go through, you know, disbelief and terror and all these things. And then you get just angry. Like, you're just like, come on, man. Like you're the specialist. Like, where am I going to go? So at that point I had, um, a mentor in the fitness industry that I was working with from a business perspective. And he, you know, he said to me, you really need to see this colleague of mine. And I'm thinking, okay, because you know, when you have pain and no one can tell you anything, you're willing to do what anybody says. Like, you go see voodoo magic? Yes, whatever, I don't care. So he says, yeah, you gotta go see Jason. So Jason was a bioenergetic practitioner. Does a lot of stuff with organs and energy and gut health and all that kind of stuff. So drove 2 and a half hours to see him. Get there and he's like, so what's going on? And I said, well, I have this, this lump in my wrist. And so it's causing me a lot of pain. And he goes, okay, hold on a second. He goes, so you drove 2.5 hours for me to see me so that you could, so I could do something with this cyst? I'm like, yes, absolutely. Cause I can't do anything. And he says to me, he was like, okay, let's do a few testing this and that. And he says, so. The amount of inflammation that's in your body is through the roof. He goes, your organs are not functioning the way they should. The energy is not moving in your body. You are not able to digest, absorb anything. And I was like, what? And he's like, yeah. He goes, we gotta, like, eliminate things. We gotta start from the ground up. We gotta build back the gut health. We gotta change a whole bunch of things. And I'm like, okay, whatever you say. You're the boss. So we ended up changing all of the food that I ate and we— I took supplements and I was not allowed to exercise at all, right? And I— so I said to him, "You know that I'm a trainer." "Yeah, yeah, yeah, yeah." He says, "Yeah, yeah, yeah, I know." I said, "Okay, so how's this going to work?" He goes, "Oh, well, that is not a me problem. That's a you problem." And I'm like, "Jason, come on." So I was like, "What are you talking about?" He goes— I said, "Could I, like, walk?" "No, you can't." I said, "Can I do yoga?" He goes, "No, you can't." I said, "Okay, what am I supposed to do with my clients?" He goes, "Two reps." He goes, "You get to show them twice, two reps, of what you want them to do." So I'm teaching— I got one-on-one clients, I'm teaching fitness classes. He's like, "You get two reps and that's it. My advice to you is pick exercises that they can do, that they already know." and recycle through those for the next 3 to 6 months. And I'm like, really? He's like, yeah. I said, okay, so what can I do? He goes, you can breathe and you can meditate. That's it. He goes, you are— you have so much inflammation that your body can't repair itself. So anytime you do something, you're like, you're starting at negative 1,000 and then you add exercise or whatever. He goes, your body can't recover. He goes, you literally are like a plant that has no soil in it. Because he was talking about water. So this is the interesting thing that I find, and I hope that your listeners take this because, you know, we need to drink water. Absolutely. But if you drink water and then you pee right away, you're not absorbing any of your water. You should be able to drink water like a bottle of water, right? And you should not have to go to the bathroom. For hours. That's how it works. And if you are peeing more regularly, as you're like— because I used to like drink water and go to the bathroom. And he said to me, he goes, I don't know why you're drinking water. I said, well, because I have to. He goes, but you're not absorbing it. You are a plant with no soil. So you're literally just pouring the water in and it's just coming out the bottom of the pot because there's no soil in there. You have nothing that's being absorbed at all. He goes, "Because your gut health is so skewed and you have so much inflammation throughout your body that your body can't do anything with what you're giving it." So even if you give it good food— and that's the interesting thing, too, right? Because when I say this, sometimes people think, "Oh, she ate junk food and processed food." No, like, okay, gluten. I've been gluten-free for 30 years. So some people— so there are lots of foods that cause inflammation in the gut. Gluten is one of them. I don't eat that. Dairy? I don't eat dairy. So I don't eat those things. So, for me, when I talk about this, I know people sometimes think, "Oh, you must have really changed a lot." Well, I didn't actually change a lot because I ate really well. Like, that's the thing. But it was just resetting everything and getting everything working the way that it was supposed to. And so that's kind of the whole story. And with him going through all this with Jason, like, My inflammation's gone. I have zero pain. I live pain-free every day. I don't take any medication at all unless, you know, yeah, if I'm sick or if, yes, I might injure myself or have a headache or something, sure. But I'm not reliant on it. It's not my first thing that I go to all the time because I just don't need it anymore. And it really, you know, working with him really made a big difference. But then in conjunction with that, I worked with mindset coach. And we did a lot of things dealing with, you know, your past and your present and your future and what that looks like. We did a lot of forgiveness work, a lot of forgiveness work. And if you've done it, you know, it sucks. It's worse than fibro. I'm going to say, if anybody's done any forgiveness work in any capacity, it's worse than even having a fibromyalgia diagnosis, like 100%. It's horrible. It's hard. But you got to go through it to get through it, right? Like, that's the key. And so I did a lot of stuff with emotional healing and trauma and all that. And it was a long journey, but it was so rewarding because, you know, when we, when we dive into pain and we dive into, you know, how our body responds to things in our life, you know, like, it's amazing. There's so much research out there. Your emotions show up in your body. Like, they do. And we don't think about that. And I think sometimes we have been— and I'm speaking of myself. You know, you're taught not to talk about your emotions. You're taught, you know, to just— if someone upsets you, "Well, they're not in my life anymore, so it's over." Well, but it's not over because you haven't dealt with what happened between you and that person. Like, why are they no longer in your life? Like, you really need to deal with and feel those emotions with that relationship that has ended. And it might have been a great thing that it ended, but what happened when you were in that relationship with that person— and it doesn't— and I'm not talking romantic, I just mean in general— but you have to deal with all of that emotional stuff. And if you don't actually deal with it— and what I mean by that is go through it, feel it, release it— and then it's over. Because when you can really, you know, talk about something without emotion, now you've dealt with it. Now you've forgiven. Now you've moved on. But we have been sold this idea that, well, just don't talk to that person anymore, or you don't mention their name, or don't see them anymore, and then that solves the problem. Well, it doesn't solve the problem because then you just press it down and you suppress it until one day you lose your vision or something else happens and you have to deal with these things. So that's the story. That's where I am. And now I help people live pain-free.